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HSE Drugs Group

A COMPREHENSIVE SERIES OF ARTICLES ON THIS TOPIC

People suffering from rare disease ‘beg’ for life-changing medicine

People suffering from rare disease ‘beg’ for life-changing medicine

Thu, 20 Aug, 2026

The HSE Drugs Group decided to recommend that the drug Skyclarys, used for Friedreich’s ataxia (FA), should not be covered by the HSE.

Taoiseach urged to intervene over funding for rare neuromuscular condition drug

Taoiseach urged to intervene over funding for rare neuromuscular condition drug

Fri, 14 Aug, 2026

Sinn Fein leader Mary Lou McDonald has written to Micheal Martin over an HSE recommendation on the drug Skyclarys.