Public invited to share their experiences of dementia
The Alzheimer's Society of Ireland
The Alzheimer Society of Ireland (The ASI) is inviting people living with dementia and family carers to take part in its 2026 ‘Experience of Dementia in Ireland’ survey.
There are 64,000 people with dementia in Ireland, and the number of people with the condition will double to over 150,000 by 2045.
This year’s survey explores the services people use, their health and wellbeing, and the day-to-day experiences that shape life with dementia. It also looks at community support and the impact of the cost of living. The ASI is particularly keen to hear directly from people living with dementia, alongside the experiences of family carers.
Family carer Tony McIntyre, who lives in Dublin, is encouraging people to share their experiences.
“When you’ve met one person with dementia, you’ve met one person with dementia – everyone’s journey is different. That’s why it’s so important that people share their own experience. By taking part in this survey, you’re helping to make sure those real, human stories are heard. Your voice can make a difference to others living with dementia,” says Tony, who cares for his wife Mary, who lives with Alzheimer’s disease.
Dr Laura O’Philbin, Research and Policy Manager at The ASI, said every person’s experience of dementia is unique.
“This survey gives us a meaningful way to capture those realities. It's especially important that we hear directly from people living with dementia, alongside the experiences of family carers. The insights gathered will directly shape our work for the years ahead and help us improve supports for families.” Two surveys are available: one for people living with dementia and one for family carers or supporters. You can take part online, by telephone, or by post.
Online: Visit .
Telephone: call 1800 341 341 to request a call back from the Research Team.
Post: request a paper copy by calling 1800 341 341 or emailing survey@alzheimer.ie. A stamped addressed envelope will be provided.
Who Can Take Part?
• Anyone living with any form of dementia • Adults aged 18+ who provide unpaid support, including family members, friends, or neighbours
